Medical Cast (in numerical order)

Dr. #1 - Orthopaedic Doc from GR - the cool guy
Dr. #2 - Hip biopsy guy, located in The D
Dr. #3 - Leg tumor remover - 'Radiology Oncologist' - also in GR
Dr. #4 - Lung tumor guy - my main Oncologist
Dr. #5 - Lung biopsy/collapsed lung creator
Dr. #6 - The Plumber - Dr. Colonoscopy and Throat Sweeper
Dr. #7 - UM Lung Specialist - hopefully, The Answer Man
Dr. #8 - Orthopedic Oncologist - The Hip Replacer
Dr. #9 - Lung Surgeon - The Wedge Resector
Dr. #10 - Pain Specialist - Real Life McDreamy
Dr. #11 - Orthopaedic Doc Numero 2 - Investigator
Dr. #12 - REAL Pain Specialist - The Angel!
Dr. #13 - Spine Guy
Dr. # 14 - Anesthesiologist
Dr. # 15 - The Cath Man

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Wednesday, August 18, 2010

Remember Me??

Web users, it's me, BMuttz! Howdy folks, how ya'll been?!? No, I didn't move to Texas, but it's been awhile since I've checked in with you guys, so I thought today would be as good as time as any to update you on how I've been....straight from the horse's mouth, for a change. You don't mind putting up with me for a bit, do ya? Good, thanks!

I know we've left the blog un-updated for a bit, but it's also been a lot of L updates of late, so what the heck. I'm sitting in chemo right now, so believe me, anything to kill some time is much welcomed. The most annoying thing about chemo days....nobody here acknowledges a difference between ESPN and The Deuce. Guys, ESPN2 is for low-budget hacks like Skip Bayless selling his worthless opinion on the poor souls like Jamele Hill and Jay Crawford (and his 2 different colored eyes - fo real!)

Seriously, if I have to be here at 9:45, you know I'm not getting in my full hour of SportsCenter that morning. Which means I need The Uno when I get here...not ESPN2! And yet, nobody here has taken my suggestion up on that very issue...uccch, HGTV and Sabrina Soto will have to do! At least until lunch.

Besides the semi-serious TV issue, sitting through chemo isn't too bad. Today is kinda rare because my usual sidekick, DBone, isn't here. I have orientation all day tomorrow for work and then we're heading to The D this weekend, so there wasn't much need for her to come all the way out to the westside this time around. Normally, we'll just sit here, watch some tube, read some old mags, maybe smoke her in some Gin Rummy, have lunch with L and then take off when all the drugs have entered this temple...I mean body. I mean stack of bones and skin and less and less muscle. Seriously, if you've ever seen a true marathoner or Ironmanner, this is the bod they have....I just wish I still had some muscle left. The pre-senior year HIGH SCHOOL body weight I am at now is kinda gross...seriously, I haven't seen this many chest bones since...uhhh, never?!?

So, today, without Madre at my side, there's just a little more time to occupy myself. But, since school is about to begin, I have been able to keep myself busy the last week and a half, or so. Making outlines, reading assignments, doing readings, updating websites and bio's (check it out - ) and all the other duties of getting ready for a new semester fill up plenty of my schedule. I don't think Bear has enjoyed her days back in the cage, but I know it sure feels good to finally be doing SOMETHING again. The Master Suite and I have had our special days together, but sorry big room in the basement, it's time to become adults again!

The big plan for today is to finish the reading assignments for my last class and then try and maybe dive into a Power Point or two...nice little Wednesday. Damn, we get lame as hell when we get old, don't we?!? Assuming I get that stuff done, lunch with L will be nice, and then I can head home and take care of the kids. Making a quick stop on the way, of course. Couldn't go all the way home without stopping at Woody's Cone Stop!

Oh, you haven't heard about the effects of the steroid I'm on, have you?!? Well, apparently it is made out of the same stuff that was used to create The Big Bang! It has essentially created a bottomless, endless, spaceless pit right below my rib cage and above my belly button! This newly created land mass has the ability to indulge in any and all food-related missions you can concoct. The US Army has been conducting research experiments within the inner realms of my stomach for the last few weeks. Seriously, my intake ability no permits me to consume up to 5 meals a day with no maximum calories. We're talking about 2 bowls of cereal for breakfast, a 3-4 course LUNCH (yes, LUNCH - anything from sandwich, EZ Mac, etc... to fruit, granola bars, sweets, etc...), dinner (as long as L gets home before 5:30), and pre-bed. This is a new meal, but consists of about the same amount of calories as a typical mid-day HEARTY snack. Add into that the potential for a meal between lunch and dinner and the daily large flurry from Woody's and we're approaching epic levels, folks! The crazy thing...I was able to gain a whopping 1.8 lbs in 2 weeks. Hahaha, I laugh at you appetite suppressors. BRING IT ON!!

Seriously though, it does feel good to have a full appetite. I was talking with my nurse this morning, and I think everyone in the cancer center would agree that it's always better to be on this side of the grass than the other! Just an added benefit from going into the hospital a couple weeks ago, I guess.

So, I will hit up Woody's tonight (usually I alternate between the Oreo and M&M large flurries, but I've been known to switch things up a bit - maybe a butterscotch or peanut butter shake. Sometimes just a simple cone with rainbow sprinkles. Who knows?!? Either way, if there's not a back-up in the freezer, you can expect to see the Protege or the Subaru at Woody's that night! The only issue with the shakes is that I still have some mouth and cold issues. These drugs I'm on have lots of different side effects, the most annoying of which I've experienced are an extreme sensitivity to cold (both in my mouth and hands/feet), some weird taste changes - like stuff just smells like it should, but when I eat it there's not the same connection, and also heartburn. The flurries, for some reason, don't bother the cold thing. But drinking the shakes kinda make it more of a pain. And the ice cream doesn't do any harm for the heartburn, but sometimes dinner does, so I gotta take it easy on the pace at which I destroy the flurry. Really though, all tolerable side effects to get the deliciousness into my belly!!

The heartburn has been pretty tolerable, too. It seems like some Tums has really taken care of it, knock on wood, so next time we're together, if you have some heartburn let me know...I promise I have some Tums in my pocket :) And probably some gum, too - without High Fructose Corn Syrup!

That's come about from my Space Research Team (SRT), and is something I've been really focusing on lately. I know sugar has its bad side effects, and especially with inflammation and some cancer cells, and blah blah blah. But thanks to my SRT on the west coast, we have found some linkage to the spreading of certain cancer cell types in HFCS. So, I thoroughly investigate the groceries I buy now and am doing everything I can to stay away from that ingredient. Did you know they put that stuff in ketchup?? How about Frosted Mini Wheats? I know, crazy, right?!? But good news...it's not in Blueberry or Strawberry Frosted Mini Wheats! Or Life! Not even good ol' Cap'n Crunch has it. Hahaha, take that HFCS cereal busters!!!

Other developments from SRT have helped me ease some tension in the house and recovery process. Trying to shake this chest/rib pain, and surrounding areas, has really been a big challenge. There's just nothing to do to speed up the process. Every morning I wake up with a left arm that feels like it weighs 1000lbs. It's a true struggle to pull the comforter up to my pillow. But, I get out of bed, deal with it through breakfast and a shower and go on with the day. Eventually it kind of just 'loosens' a bit, and I can function. Not fully, and definitely not actively, but I can do what I need to do - type, drive, work, etc.... Golf is still not even close, not that I'm the only one not utilizing my talents, hmm hmm, but I am hoping to be able to play at least a couple times before my birthday in 2 months - and based on the last couple days, I would say that is realistic. The pain does seem to be getting less and less, but every night the smallest 'wrong move' can reset that day's progress. Something I'm dealing with, and getting used to - which means when it's healed, the appreciation will just be that much greater!

Lastly, my leg. Because I've been participating in the real life schedule of getting out of bed at normal hours, I've been the one taking Bear out in the morning as L heads into the office. These ventures give me the 5 minutes I need to do some stretching of my leg, and try to get that thing rehabbed. The problem in the past was, as we kind of figured out and were told, I was just trying to do too much too soon. The expectations that I would be able to walk the day after surgery and exercise in a couple weeks, etc.... were just not realistic for what I had already been through. Extensive radiation, plus going through chemo, just didn't provide a stable enough leg for me to 'workout' on. So, I pushed myself into an injury, basically. I eliminated the possibility of rehab because I went backwards in recovery.

So, I took a lot of time off from physical therapy exercises. The last couple weeks, I have felt strong enough to ease my way back in. So, I've been doing some of the basic things, and based on the soreness, we're doing things the right way this time. I'm not pushing anything, I'm really focusing on the 'do what you can do/patience' approach, and am hoping by the turn (or just before) of the calendar year, I'll be able to ditch the cane and do my New Year's Dance on 2 good legs!! At that time, I would also like to enjoy an adult beverage - my 3rd of 2010!! Yikes!!

BMuttz blogheads, I think that's about all I got. Thanks for stopping by and checking in. Feel free to post questions if you have them, and check back for answers. Or, just feel free to enjoy the reading. I really do appreciate everyone's support these last several months and it's been nice hearing from so many people I lost contact with. I know at some point we entered each other's lives for one reason or another, and I'm glad you appreciate that reason and re-connected with me if it's been awhile, or continue to be an instrumental part of my life if you're more of a, well, 'regular'.

Your wishes, support, advise, strength, stories and love help make each day enjoyable. I'm not the type of person who sits and thinks about the disease I have or talks about it regularly. I honestly try not to think about it. But it's nice to know that there is a group of you out there that I can come to when I do have something to say. Thanks for 'listening' to me and L. We love you, and WE GOT THIS!!

12 comments:

  1. So good to hear from you, B! I'm glad you're taking the docs' advice and being patient with your recovery now.

    The Tums in your pocket line made me LOL and Jake knows why. Just last night he uttered the exact same comment! You guys are connected on some weird wave length or something. He had heartburn and was telling me that his dad says he has to carry Tums in his pockets at all times. He was like, how nerdy is that? I'm gonna be the guy with Tums in his pockets. Well, I guess he won't be the only guy under 50 to do so. :)

    Keep up your great attitude, B. You're an inspiration. Can't wait for you, Jake and Nasa to have some bonding man time next weekend. He's really been looking forward to it. Maybe you guys can make a friendship bracelet out of Tums? Hee, hee.

    I know I have a ton of questions, but, of course, I'm drawing a blank right now. Maybe I'll come back later. Until then, take care and good luck with school next week!

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  2. Yo, brotha, great to hear from you. Your spirits seem high. I like it! It seems like you're making tangible progress every day. I've said from day one that progress will eventually lead to normalcy and recovery. You're on your way. X hit it right on the head. Papi actually recently told me to carry ant-acids in my pockets at all times. It made me feel like I'm in the AARP cohort. Between your hip and my stomach, we're some old souls, man. Maybe we should watch a Cocoon marathon? All jokes aside, I'm looking forward to next weekend. It's going to be a great reunion. I've been working on my hip jokes, you get your short-jokes aresenal ready. See you soon. Stay strong.

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  3. It was so wonderful to read your blog today. I think about you every day. Your strength and courage is really heroic. I am so happy about your new job. Our love to you and Lindsay.

    xoxoxo
    Esther and Marty

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  4. What a great post today!!!! As I always tell you and Lindsay, your love and positive attitudes are truly an inspiration.
    I know you did great without me but I missed our "together" time with Tammy.
    You have filled everyone in on your real feelings and how you spend your days. I have watched you and loved you more each day as you continue to "get this" awful awful disease.I know you have learned so much, even the things we don't want to ever know, but again all of us that you touch out there will never be the same and hopefully in a good way.
    We all love you and wish you continued strength. I am glad that you are looking forward to starting your new venture.

    With all my love,
    Mom

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  5. Ben, loved the blog today. UPBEAT!! YOU GOT THIS!!!
    My daily prayers are with you and the entire family.

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  6. My man, what is the hfcs free gum of choice. I was late getting to a customers site today cuz I saw your blog post pop up in my outlook right as I was leaving the office, that shit takes priority !. Glad the meds got ya on track. Sounds like your eating as much as lou now, and we know he's a healthy boy :)... On the ketchup tip heinz just launched Simply Heinz made from sugar, no hfcs, people are getting wise. :) much love see you in 9.

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  7. Dear Ben,

    Thank you so much for the post! Wow, I really need to clean out my cupboard. We are so glad to hear that they finally have found some medications that are giving you some relief and appetite. Love to you and Lindsay, we pray for you both every day,
    Aunt Julie and Uncle Steve

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  8. Good update holmes. I'm sure there is still something bad in Capt'n Crunch. That cereal is the worst! Have you overlooked Wheaties?

    PVC

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  9. Congrats on the headway BMuttz. You sound great. Always good to get updates from L.. but so nice to hear your "voice" again here sounding so strong. The blog seems like a good way to pass time during chemo.. and make it meaningful.. since there are so many people out there who truly care how you are doing and can't get enough of the updates.. even the distant ones like me. (L's friend and cohort at her truly lovely job while here in Chicago - I know you remember all that fun.) Continued prayers for you.. including a sports channel lineup correction from the powers that be @ the Chemo Lounge. They seriously need to help a brother out.

    Hi to L. ... and Happy Anniversary to you both!

    ~ Kristin

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  10. Nice to get the update straight from the gangsters mouth!! I was hoping to come chill when NASA and the boys were there, but will be working. I'm moving back to detroit for Sept and Oct for work so ill be in touch so we can find a time to kick it. Stay up my brother. Thinking about you

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  11. Hi Ben, good to hear from you, you sound great. We love hearing from you and L. I hear you about the HFCS try to avoid MSG too; I am slowly turning to all organic or NON GMO. Take care and enjoy next weekend.
    -Erica

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  12. ben-did any of your doctors ever teach you how to fight cancer with food? no chemo, rad, or other drugs are needed. please consider contacting me. i teach my patients how to prevent/reverse cancer and other chronic diseases and think i can be of benefit to you and your family. 775 223 8260 dr.gbh

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