Medical Cast (in numerical order)

Dr. #1 - Orthopaedic Doc from GR - the cool guy
Dr. #2 - Hip biopsy guy, located in The D
Dr. #3 - Leg tumor remover - 'Radiology Oncologist' - also in GR
Dr. #4 - Lung tumor guy - my main Oncologist
Dr. #5 - Lung biopsy/collapsed lung creator
Dr. #6 - The Plumber - Dr. Colonoscopy and Throat Sweeper
Dr. #7 - UM Lung Specialist - hopefully, The Answer Man
Dr. #8 - Orthopedic Oncologist - The Hip Replacer
Dr. #9 - Lung Surgeon - The Wedge Resector
Dr. #10 - Pain Specialist - Real Life McDreamy
Dr. #11 - Orthopaedic Doc Numero 2 - Investigator
Dr. #12 - REAL Pain Specialist - The Angel!
Dr. #13 - Spine Guy
Dr. # 14 - Anesthesiologist
Dr. # 15 - The Cath Man

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Tuesday, April 6, 2010

The 1st day of the road to recovery

A ton has happened since the last update so I am going to lay it out here. Today, as many of you know, marked day number 1 of chemo for B. D Bone has been in town since Saturday and took B to treatment. Today started very early, with a 7 am wake up call for everyone...well everyone but B. He was already up because he never quite fell asleep last night. B had to be to Lemmen Holton by 8 am and they got things underway right away.

B started the day with a special drip of Zomata, which is the drug used to make the bone in B's hip super strong. The down side, of course, is that it makes B's body ache, which builds to the problem at hand....B is super sore already in both the hip and the neck. That drip was followed up by 2 different anti-nausea drugs. These first 3 bags took about 1.5 hours. Then came the all important chemo drips. I guess you could say that we have been looking forward to starting the chemo since it means that the drugs in the chemo IV are working to kill the cancer cells in B's body and to prevent/control further spread. That makes me feel much better....get that shit out of there already! B's chemo drips were super long...the first was more than 3 hours and the second was about 1 hour 15 minutes. Not to mention all the saline shots in between...and the 2 morphine shots to help B get comfortable.

We packed a bag to keep the day interesting......cards, sudoku, backgammon, and books. B and D Bone were in a private room with a bed and a TV so that B could rest, if he needed, and since we are not getting much sleep these days we thought that the bed would be a great benefit. With my office being so close, I just walked through the tunnel and stopped over for a visit on my lunch hour. D Bone and B were playing cards, and D Bone was quick to let me know that she was kicking B's ass in a friendly game of gin....love it! They were also watching HGTV, also love it! As D Bone said, it was a nice day with her son, just terrible circumstances, but we have to make good moments out of the bad these days. And B didn't seem to mind it too much, either. Even though at one point he had 3 different tubes hooked into his arm. Good thing that kid has the easiest veins EVER! Dr. #4 even said B didn't need the usual chemo port because it's so easy for B to give blood and take infusions.

We all enjoyed a lunch and then we returned back to the private room. I was a bit out of routine today and had a hard time pushing the IV at a good pace. I forget that B is on crutches so I pushed the IV way too fast and damn near pulled the line out of B's arm....I did not have my normal A game today and felt bad all day not being there with him. Not to mention when we got back to the room B was resting comfortably and I decided to sit on the bed with him and landed right on the control that operates the bed. This error caused B's leg to shift and he yelled out....again not on my A game. So day numero uno is almost done and we still don't quite know what we have in store. The staff did say that B is going to be sore from the chemo too, and he probably will lose the hair, but big deal. Let's just hope he doesn't react too bad to the drugs.

In addition to starting chemo today, there was some other big news from an appointment on Monday with Dr # 4. He decided that we needed to move into a full court press approach. He said that we were going to start chemo this week, and then have surgery on the hip next week. You heard it right, the surgery is back on!! Dr # 4 wants to be aggressive, and until B has the hip surgery he will not be walking and will continue to be in terrible pain. Dr. # 4 thinks that chemo will be much more difficult if B is not walking, so surgery is back on. B's having surgery next week...Wednesday in D Town. It is going to be pretty major, but the good news is that he will be weight bearing that same day. Surgery will be somewhere around 5-8 hours, and he'll be in the hospital for about a week or so. The hope is that B will be walking by June....I could almost cry thinking about that. Dr. # 4 said that there is obvious concern because the disease has progressed, but he did follow that up by saying that we aren't sure what is going to happen since this is our first attack on the cancer. He said that B could respond to the chemo and that this could work to control things...so let's just hope that we get a break these next few months.

After the surgery and recovery we're back home to GR for the second round of chemo. This next month or so it going to be hell, but we got this. We Got This!!! Dr. # 4 also hopes to be able to use the tissue from the hip for the genetic testing, and hopefully, by treatment number 3, we should have a good read on what we are dealing with and if we need to make any changes in treatment.

It's going to be a rough road and we need all the prayers and positive energy we can get. Thanks again for all the support and for keeping the blog alive.

16 comments:

  1. Hi B and L,
    Well, I have to say I feel pretty stupid sitting here having had an all out brawl with my fiancee about something that really does not seem that important in the big scheme of things. We are in the process of moving in together - something you guys could probably relate to not that long ago. Anyway, it comes with some adjustments. The point is reading this blog tonight reminded me of whats important. Do I expect to never initiate another arguement - Not at all. But you have shed some much needed light onto the blessings I have in my life. Ben, I am glad you have someone like L to go through this with - even if I dont know her. I am thinking about you.

    Marcy Tashjian

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  2. Bmuttz: That's great news about the hip. I'm way pumped for both of you. Keep your game face on and chemo will just fly by. We got this! Stay strong, dude. And L, watch out for that remote. Those craftmatics can be as dangerous as walking a tightrope over shark-infested waters. ... keeping both of you in mind always.

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  3. Wow. That really is big news, and great news. I think Dr. #4 knows what's up. He obviously realizes B's strong enough to withstand a fight that aggressive, which is right on. This plan of attack sounds like the best idea to me. Don't let it even think about spreading any further.

    L, he'll be walking in no-time.

    B, you're gonna kick cancer in the cajones!

    P.S. This fashion editor would like you to know that that bracelet is one of the hottest trends out there right now! And you pull it off masterfully. :)

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  4. You are both in my thoughts! Your strength continues to inspire!

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  5. L and B-

    Thinking about you both. Anything I can do when your on this side of the state let me know.

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  6. Dear Ben and Lindsay,
    Uncle Steve and I are so relieved that they are finally going to start to kill this poison. Please let us know if there is anything thing that we can do for either of you. We love and cherish the both of you.
    You are in our thoughts and prayer,
    Aunt Julie and Uncle Steve

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  7. I got my We Got This!!! bracelet on! Stay strong and if you need anything to pass the time, Ben you can battle with Planas on the MSU recruitment rumor mill.

    Pat and Mel

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  8. What Anna C said. Truly an inspiration!

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  9. Ben, Our thoughts and prayers are with you. Between the marvels of medical science and your amazing positive attitude you'll have this beat. It sounds like you have an incredible supportive wife too. We'll be thinking about you and praying for you next Wednesday during your surgery. Cindi D

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  10. You're always in my thoughts and pratyers. Keep staying strong.
    Which hospital is your hips surgery at here?

    <3 Jessica Gold

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  11. Hey, it's Teri again...It's so good to read these blogs and see the progress. I wanted to offer a couple of pieces of wisdom from someone who has had enough toxic chemicals inside 'em to still glow in the dark. One thing my docs always told me was that they had to make me sick before they could make me better. The biggest side effect of most hard chemo is that it isn't cell specific. In otherwords, the chemo can't differentiate between healthy cells and cancerous ones. That's why the hair loss, weight loss, etc. happen. I don't know if it'll help you guys through the process, but I learned a ton about the different drugs and how they interacted within the cells to destroy them. I'm not sure if it helped me, but I used to picture the chemo going in and blowing the cancer cells up. Lol..kind of like my own personal video game.

    My oncologists were all here in GR. You're in the best hands, B. Stay strong, and you both are in my thoughts and prayers.

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  12. Hi Ben & Lindsay, you are both so exceptional it blows me away!!! I have great hopes that you will Kick the Ass out of this Cancer....I hope tomorrow goes well with your blood work and Weds is a go already. Best of luck on that and of course D will always keep me posted. Love, Jan Tilchen

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  13. You have been in our thoughts and prayers since we first heard about Ben's health problems. We are confident that all of the doctor's are trying to bring Ben's heatlh back to normal and with everyone's prayers,he will,in time, be back to living a normal life!Keep up your spirits and good luck with the surgery and chemo.
    Love you,
    Aunt Mary and Uncle Burt

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