Web users, it's me, BMuttz! Howdy folks, how ya'll been?!? No, I didn't move to Texas, but it's been awhile since I've checked in with you guys, so I thought today would be as good as time as any to update you on how I've been....straight from the horse's mouth, for a change. You don't mind putting up with me for a bit, do ya? Good, thanks!
I know we've left the blog un-updated for a bit, but it's also been a lot of L updates of late, so what the heck. I'm sitting in chemo right now, so believe me, anything to kill some time is much welcomed. The most annoying thing about chemo days....nobody here acknowledges a difference between ESPN and The Deuce. Guys, ESPN2 is for low-budget hacks like Skip Bayless selling his worthless opinion on the poor souls like Jamele Hill and Jay Crawford (and his 2 different colored eyes - fo real!)
Seriously, if I have to be here at 9:45, you know I'm not getting in my full hour of SportsCenter that morning. Which means I need The Uno when I get here...not ESPN2! And yet, nobody here has taken my suggestion up on that very issue...uccch, HGTV and Sabrina Soto will have to do! At least until lunch.
Besides the semi-serious TV issue, sitting through chemo isn't too bad. Today is kinda rare because my usual sidekick, DBone, isn't here. I have orientation all day tomorrow for work and then we're heading to The D this weekend, so there wasn't much need for her to come all the way out to the westside this time around. Normally, we'll just sit here, watch some tube, read some old mags, maybe smoke her in some Gin Rummy, have lunch with L and then take off when all the drugs have entered this temple...I mean body. I mean stack of bones and skin and less and less muscle. Seriously, if you've ever seen a true marathoner or Ironmanner, this is the bod they have....I just wish I still had some muscle left. The pre-senior year HIGH SCHOOL body weight I am at now is kinda gross...seriously, I haven't seen this many chest bones since...uhhh, never?!?
So, today, without Madre at my side, there's just a little more time to occupy myself. But, since school is about to begin, I have been able to keep myself busy the last week and a half, or so. Making outlines, reading assignments, doing readings, updating websites and bio's (check it out - ) and all the other duties of getting ready for a new semester fill up plenty of my schedule. I don't think Bear has enjoyed her days back in the cage, but I know it sure feels good to finally be doing SOMETHING again. The Master Suite and I have had our special days together, but sorry big room in the basement, it's time to become adults again!
The big plan for today is to finish the reading assignments for my last class and then try and maybe dive into a Power Point or two...nice little Wednesday. Damn, we get lame as hell when we get old, don't we?!? Assuming I get that stuff done, lunch with L will be nice, and then I can head home and take care of the kids. Making a quick stop on the way, of course. Couldn't go all the way home without stopping at Woody's Cone Stop!
Oh, you haven't heard about the effects of the steroid I'm on, have you?!? Well, apparently it is made out of the same stuff that was used to create The Big Bang! It has essentially created a bottomless, endless, spaceless pit right below my rib cage and above my belly button! This newly created land mass has the ability to indulge in any and all food-related missions you can concoct. The US Army has been conducting research experiments within the inner realms of my stomach for the last few weeks. Seriously, my intake ability no permits me to consume up to 5 meals a day with no maximum calories. We're talking about 2 bowls of cereal for breakfast, a 3-4 course LUNCH (yes, LUNCH - anything from sandwich, EZ Mac, etc... to fruit, granola bars, sweets, etc...), dinner (as long as L gets home before 5:30), and pre-bed. This is a new meal, but consists of about the same amount of calories as a typical mid-day HEARTY snack. Add into that the potential for a meal between lunch and dinner and the daily large flurry from Woody's and we're approaching epic levels, folks! The crazy thing...I was able to gain a whopping 1.8 lbs in 2 weeks. Hahaha, I laugh at you appetite suppressors. BRING IT ON!!
Seriously though, it does feel good to have a full appetite. I was talking with my nurse this morning, and I think everyone in the cancer center would agree that it's always better to be on this side of the grass than the other! Just an added benefit from going into the hospital a couple weeks ago, I guess.
So, I will hit up Woody's tonight (usually I alternate between the Oreo and M&M large flurries, but I've been known to switch things up a bit - maybe a butterscotch or peanut butter shake. Sometimes just a simple cone with rainbow sprinkles. Who knows?!? Either way, if there's not a back-up in the freezer, you can expect to see the Protege or the Subaru at Woody's that night! The only issue with the shakes is that I still have some mouth and cold issues. These drugs I'm on have lots of different side effects, the most annoying of which I've experienced are an extreme sensitivity to cold (both in my mouth and hands/feet), some weird taste changes - like stuff just smells like it should, but when I eat it there's not the same connection, and also heartburn. The flurries, for some reason, don't bother the cold thing. But drinking the shakes kinda make it more of a pain. And the ice cream doesn't do any harm for the heartburn, but sometimes dinner does, so I gotta take it easy on the pace at which I destroy the flurry. Really though, all tolerable side effects to get the deliciousness into my belly!!
The heartburn has been pretty tolerable, too. It seems like some Tums has really taken care of it, knock on wood, so next time we're together, if you have some heartburn let me know...I promise I have some Tums in my pocket :) And probably some gum, too - without High Fructose Corn Syrup!
That's come about from my Space Research Team (SRT), and is something I've been really focusing on lately. I know sugar has its bad side effects, and especially with inflammation and some cancer cells, and blah blah blah. But thanks to my SRT on the west coast, we have found some linkage to the spreading of certain cancer cell types in HFCS. So, I thoroughly investigate the groceries I buy now and am doing everything I can to stay away from that ingredient. Did you know they put that stuff in ketchup?? How about Frosted Mini Wheats? I know, crazy, right?!? But good news...it's not in Blueberry or Strawberry Frosted Mini Wheats! Or Life! Not even good ol' Cap'n Crunch has it. Hahaha, take that HFCS cereal busters!!!
Other developments from SRT have helped me ease some tension in the house and recovery process. Trying to shake this chest/rib pain, and surrounding areas, has really been a big challenge. There's just nothing to do to speed up the process. Every morning I wake up with a left arm that feels like it weighs 1000lbs. It's a true struggle to pull the comforter up to my pillow. But, I get out of bed, deal with it through breakfast and a shower and go on with the day. Eventually it kind of just 'loosens' a bit, and I can function. Not fully, and definitely not actively, but I can do what I need to do - type, drive, work, etc.... Golf is still not even close, not that I'm the only one not utilizing my talents, hmm hmm, but I am hoping to be able to play at least a couple times before my birthday in 2 months - and based on the last couple days, I would say that is realistic. The pain does seem to be getting less and less, but every night the smallest 'wrong move' can reset that day's progress. Something I'm dealing with, and getting used to - which means when it's healed, the appreciation will just be that much greater!
Lastly, my leg. Because I've been participating in the real life schedule of getting out of bed at normal hours, I've been the one taking Bear out in the morning as L heads into the office. These ventures give me the 5 minutes I need to do some stretching of my leg, and try to get that thing rehabbed. The problem in the past was, as we kind of figured out and were told, I was just trying to do too much too soon. The expectations that I would be able to walk the day after surgery and exercise in a couple weeks, etc.... were just not realistic for what I had already been through. Extensive radiation, plus going through chemo, just didn't provide a stable enough leg for me to 'workout' on. So, I pushed myself into an injury, basically. I eliminated the possibility of rehab because I went backwards in recovery.
So, I took a lot of time off from physical therapy exercises. The last couple weeks, I have felt strong enough to ease my way back in. So, I've been doing some of the basic things, and based on the soreness, we're doing things the right way this time. I'm not pushing anything, I'm really focusing on the 'do what you can do/patience' approach, and am hoping by the turn (or just before) of the calendar year, I'll be able to ditch the cane and do my New Year's Dance on 2 good legs!! At that time, I would also like to enjoy an adult beverage - my 3rd of 2010!! Yikes!!
BMuttz blogheads, I think that's about all I got. Thanks for stopping by and checking in. Feel free to post questions if you have them, and check back for answers. Or, just feel free to enjoy the reading. I really do appreciate everyone's support these last several months and it's been nice hearing from so many people I lost contact with. I know at some point we entered each other's lives for one reason or another, and I'm glad you appreciate that reason and re-connected with me if it's been awhile, or continue to be an instrumental part of my life if you're more of a, well, 'regular'.
Your wishes, support, advise, strength, stories and love help make each day enjoyable. I'm not the type of person who sits and thinks about the disease I have or talks about it regularly. I honestly try not to think about it. But it's nice to know that there is a group of you out there that I can come to when I do have something to say. Thanks for 'listening' to me and L. We love you, and WE GOT THIS!!
Wednesday, August 18, 2010
Sunday, August 8, 2010
Happy Anniversary
So today is B and I's One Year Anniversary. It is almost hard to believe that we made it to our One Year. Let me say that the first year has definitely been the hardest. B and I have been faced with many challenges but we have both proved that we are made for each other. I have proved to myself that I am a stronger person than I ever thought I could be, and I have only come to this realization after meeting B.
B makes me want to be a better person and I work so hard to make him happy. We managed to get away for a nice weekend at the Little River Casino Resort. We had planned a nice weekend of golf, however decided to put the golf part of the weekend on hold since B's shoulder is still really hurting. Instead we did some gambling, and had a perfect dinner at a nice beach town restaurant.....the Glennview. All I wanted was lobster and butter, and B was able to produce!!!! The weekend was perfect!!!!
So just in case B forgot why it is that I love him, I thought that I would make it public to everyone so here I go.
1. B puts me first always. For example, today we had an in room massage planned, and there was some major confusion at the hotel. The massage was supposed to be in the room, but early this morning we found out that the massage therapist could not come to the room, and with B feeling pretty bad, leaving the room to go out for a massage was not in the cards. I was so mad about the confusion, and was going to cancel, but B insisted that I go. He said I needed the massage, but we all know that he is really the one who could use the massage. This is just one example. He also sent me flowers to work and got me the most beautiful bracelet. And the flowers were our wedding flowers....and I thought didn't care, boy was I wrong! He is so sweet!!!! Not only that, B has said that this cancer fight is for me. What more could a wife ask for.
2. B has true drive and motivation. B interviewed and landed a job during one of his most grueling and exhausting Chemo Treatments. To be honest I have no idea how he got through the interview since he was crawling around on his hands and knees the morning of the interview. And not only that he had doubts about accepting the job, but was determined to have the cancer team find the right combo of meds and chemo so that he could teach. He is truly motivated, and a good example to everyone. Hey if B can go to class and teach 1 day after chemo, everyone out there can go to work with an upset stomach.....sorry I have no sympathy for lame work absentees at this point.....nothing comes close!!!!!
3. B has proved that he is handsome with any look. Since B and I have been together he has gone through a variety of looks...from a Mohawk, to a Jew fro, to clean cut, and now buzzed. And with every look he has managed to remain handsome. He is beautiful inside and out. Not only that he puts up with me and my narcotic tendencies. He is truly eye candy, but he is married, so ladies, hands off!!!
And the list could go on. I can only hope to one day share in the joy of having a baby, and owning a home in grand rapids with B. Let's just hope that soon we will be able to put this frickin nightmare behind us. So tonight we shared some anniversary cake and celebrated our first year of marriage.
So Happy Anniversary to the best husband in the world. I love you more today than the day I married you. Te BMo!!!!!!
Also thanks to everyone for the kind gifts and thoughtful cards. We are lucky to have such loving and strong people behind us.
Wednesday, August 4, 2010
Pressing Our Luck
So when I last updated, B was still residing on 5 south, however I am happy to report that he checked out of the 5 south dream tower and is resting comfortably back here at Casa de Muttz. He checked out of the hospital on Thursday, and is doing much much much better. The pain seems to be in check and Dr. # 12 promised to touch base with us again on Monday to make sure that we were on the right track....the track to a pain free life. It is incomprehensible to think how long B has been living in pain, but it has been almost 7 months. 7 months of gut retching, back twisting, eye bulging PAIN, and I can honestly say that he is close to slamming that book closed, hopefully forever.
We had a pretty busy weekend, however we knew better then to press our luck....no whammy, no whammy, no whammy, stop. So on Friday we had an early dinner at home and decided to go out to the movies. Up until this point, going to the movie required some serious pre-planning. We had to make sure to time B's meds around the movie times, however this past weekend we just picked up and went to the show. It was a great date night, that ended with a heated putt putt golf battle. B and I decided to hit up the local Craig's Crusiers...you know Craig's Cruisers, where the fun never ends!!!!! And I am happy to report that B beat me fair and square....even with a bad arm and a bad leg.
And on Saturday we headed North for my youngest niece's birthday party. It was a great time and just seeing the girls brightened both our day. Arleigh Grace and Kensley Catherine are so stinken funny. They fight over toys and both play like hell, however the highlight of the weekend was when both girls were in the pack-and-play, and Kensley yelled out...."Bumpa" aka Grandpa Don, "Arleigh Bites". That is a true fact, Arleigh does bite, and Kensley was telling the truth. What a hoot. Following the party B and I came back home for a quick nap and then last minute decided to hit up the Outback for a celebratory dinner, toasting a good report from Dr. # 4 and B's new job. We then capped off the weekend with a trip to the Cascade Meijer......wow what day. Taking us into Sunday, the day of rest. Both B and I took full advantage of the Catholic Sabbath, and rested for most of the day Sunday, knowing full well we had a tough week ahead....Chemo Week....Hell Week.
So Tuesday has come and gone, and so far so good. Do I dare say that Dr. # 4 and the staff have finally figured out the right concoction of meds and chemo drugs. For the first time EVER B seems to be handling the chemo with true grace. He isn't nauseous, he doesn't have hiccups, and has an appetite. The only noticeable side affect is that B is pretty tired. But let me say on the record, I will take tired over vomiting any day of the week. Finally a tolerable Chemo week. And this comes at the perfect time since B and I will be celebrating our 1 year anniversary this weekend.
We are looking forward to a nice, relaxing, and well deserved weekend getaway. So happy early anniversary to B and I, with many many many more to come.
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