Medical Cast (in numerical order)

Dr. #1 - Orthopaedic Doc from GR - the cool guy
Dr. #2 - Hip biopsy guy, located in The D
Dr. #3 - Leg tumor remover - 'Radiology Oncologist' - also in GR
Dr. #4 - Lung tumor guy - my main Oncologist
Dr. #5 - Lung biopsy/collapsed lung creator
Dr. #6 - The Plumber - Dr. Colonoscopy and Throat Sweeper
Dr. #7 - UM Lung Specialist - hopefully, The Answer Man
Dr. #8 - Orthopedic Oncologist - The Hip Replacer
Dr. #9 - Lung Surgeon - The Wedge Resector
Dr. #10 - Pain Specialist - Real Life McDreamy
Dr. #11 - Orthopaedic Doc Numero 2 - Investigator
Dr. #12 - REAL Pain Specialist - The Angel!
Dr. #13 - Spine Guy
Dr. # 14 - Anesthesiologist
Dr. # 15 - The Cath Man

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Sunday, May 30, 2010

The Ugly Truth

B and I have been flying around in a holding pattern for what seems like years....more like 6 months, but I think that we are close to landing on the ground so to speak. The Dr.'s are finally getting some of the answers we have been waiting months for.

This past week B was scheduled for his MRI and CT scan. Actually both tests were moved up because B is in so much pain. So the truth comes out. The truth of the matter is that B is living in extreme daily pain. The pain is so bad that I really can't think of a time in the past 2 months where B was not rubbing his neck or leg, icing his neck or leg, heating his neck or leg, or moaning at any given point throughout every single day. The pain really starts to eat at you, and I would say that B and I are starting to crack up. Sure we do things to feel normal, like going to movies, or hanging out with family and friends, but the truth is the pain is still there. B lives by the clock and is constantly watching the hours until the next time he can take his non-working pain meds. B has a pill for everything, but the trouble is nothing helps with the pain. I know that it is best for the mental health to get out and do things but it is hard.....really, really hard! I guess the alternative is to crawl in bed and pull a blanket over my head and cry, but that is not going to do any of us any good. Everyone thinks that I am so strong, but I am really sensitive and there is not a day that I don't cry, so I guess my secret is out. It is terrible to see the person in the world that you have given your heart to suffer so much and not be able to help. Plain and simple B and I are living in hell! A perfect example is on Friday. B and I got a brand new Subaru Forester, exciting right? Well the man selling us the car said "Isn't this exciting, getting a new car", and neither B or I answered. The Ugly Truth is that nothing but your health matters, and when it is being threatened nothing really makes you happy. B is really suffering and it is not fair, so there is your ugly truth.

Now back to the matter at hand.....the scans came back and it appears that the lung tumor is about the same size. Dr # 3 said that the tumors on B's pelvis and L4 appear to be more spiral which could indicate that B is responding to treatment....I guess the spots look hollow so that is a good sign. Dr # 3 also said however that the spots on the neck appear to be marginally worse. The lesion has spread to the muscle belly on the right side, which is the reason that B is having additional neck pain. Dr # 3 recommended radiation of the neck and he hopes that this helps to kill the little bastards. He mentioned giving B a stronger dose this time around since B did not respond great to radiation in his hip. B is scheduled for 13 treatments and they start next week. Let's hope that radiation works this time around. So on Friday B completed the prep work, including getting his face cast with a mask, so that radiation can start on Monday.

We also got the results back from Cali, and I am sure you all want to know what is going on, but we still really don't know. We have not heard from Dr # 4 yet so we are just going to have to wait and see. The results are interesting, but we are not the ones to interpret them. Boy would I have things really messed up if I tried to figure out what the tests really said. There is a chance that Dr. # 4 may change B's chemo drugs based on these results, but again, we won't know until we talk to Dr # 4.

For now we are just going to continue on fighting. I am sure that these next few months are going to be pretty hard since B is having Chemo and radiation. This will likely knock B on his ass, but he is tough and he will get back up and continue on. We are making the best of the situation. We did spend some time this past weekend with friends and we were able to golf our first round of 18 this summer. And I might add that I holed out for a dirty birdie, pretty bad ass. We also visited the red neck yacht club and took the Party Barge out for a trip around Lincoln Lake, courtesy of Captain Morgan, I mean Captain Don Jr. Like I said...trying to make the best of the situation.

Hope everyone is enjoying the beautiful holiday weekend. Come back for more info later this week.

11 comments:

  1. My heart is with you guys. Still thinking of you guys daily. Keep going.

    Much Love,

    Craig

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  2. Lindsey, this is such a brave thing to do. To just be honest about the situation. How he's feeling, how you're feeling. Your family and friends don't need a sugarcoated version of things. They (we) are here to help and support you and the best way to do that is to know what you guys are dealing with day-to-day.
    And, you sure as hell ARE strong. Strength doesn't mean not crying or wearing a happy face all the time. It means persevering and that's exactly what you're doing with every day you get through. If anything, this blog post has only made me MORE convinced of your strength. So, keep on keeping on. No matter how you do it.
    The same goes for Ben. I am so sorry to hear about how much pain you're dealing with. It absolutely breaks our hearts. We're praying every day that it gets better — and it will. Please believe.

    Lots of love,

    X

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  3. Man, this post was difficult to read. I can't even begin to imagine what you guys go through day in and day out. Although none of us can relate to the physical pain BMuttz is going through, and the mental anguish you both are dealing with, most of us who routinely visit this blog know just how much fight both of you have. You both have the mental fortitude of a prized fighter and the power of the strongest armies. Know when either of you ain't feeling up to it, we're always here to pick you up. I mean that. We're here for you and we'll always be. Keep on punching, clawing and scratching until this thing is beaten. And when you can't fight anymore, we're only a phone call away. We're here to do the dirty work too.

    KEEP FIGHTING.

    Best wishes.

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  4. We're all in this with you guys and have been since day 1. We'll continue to remain positive and wait for good news. We won't stop praying for you or stop keeping you in our thoughts. I haven't taken my blue bracelet off since I got it.

    Keep fighting.

    Love,
    Pat and Melissa

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  5. Dear Ben and Lindsay,
    Thank you so much for continuing to write. Unselfishly, you think of others. Lindsay, do not doubt your strenght simply because you show emotion. To be so young and have to look at something so ugly takes an unmeasurable amount of courage. Your are both in our thoughts and prayers, we love you so very much, Uncle Steve and Aunt Julie

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  6. Lindsay & Ben -

    I began following your blog after my younger sister Anna, who graduated high school with Ben, told me of your battle several months ago. Your perserverance is a reminder of how precious life is and how nothing else (like a Subaru Forester)is more important than the health of the people you love.

    Keep going with the support of your close family and friends... and know that there are people out there, as remote as they might be, that are saying prayers for your return to normalcy and for your full recovery.

    Keep going!!!

    Ingrid

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  7. I was so grateful to wake up to pouring rain because I knew if it was pouring rain I could go sit at St. Charles at their Eucharist Adoration with no presssure and just spend time doing what I do most every minute of every day. Although, I don't have the luxury of sitting at St. Charles every day, every moment, every thought, is directed towards Ben getting better. Not just for Ben, but for all of us. The suffering, physical and mental that we have had to watch Ben and Lindsay endure these past 6 months is a reminder of how precious life is. They say God's grace if sufficient------I say bring it on. Thanks to all of you for all your prayers, e-mails, telephone calls, meals, rides, house cleaning, snow shoveling, grass cutting, pill fetching, cookies and cheesecakes in the mail. I am thanking all of you for following the blog because that in itself is a little prayer for Ben and Lindsay and their families. Keep praying---keep going to temple and mass or convents and churches, whatever, wherever, however. Keep praying for the doctors especially that they find those answers they are searching for and pray Ben will respond to the radiation so his pain will be reduced. Lindsay is right that the next few weeks will be rough, but all I could picture today was Ben hobbling with his cane across the parking lot at Grand Valley with his bookbag slung over his shoulder in the POURING Rain. All of your prayers are what are keeping us all going. Keep fighting Ben and Lindsay. Ben I lit another candle for you today.
    Love
    Mom (Nanc)

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  8. Stay strong brotha!! Your crew is deep, feed off our love!

    Its mad sobering to hear you're dealing with extreme pain on the daily. Keep your eye on the prize, you set your goals, we'll reach them!

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  9. Keep it up you two your strength is an inspiration to us all.

    Jim and Danielle Sidou

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  10. Ben & Lindsay,
    Your honesty in this last post was raw & sobering to those of us who sit back and pray for you daily. Though we only met that one time in our lives on vacation in Costa Rica we feel close to you & feed off your admirable strength! As many said in previous posts emotion is not weakness, your friends and family want to know what is REAL in your lives through your journey! We are routing for you ......... you are both resilient & an inspiration to keep our priorities in line!

    Love Wade & Lisa Wynn

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  11. I think of you both and pray for you daily.
    Your blog certainly makes me realize what's important. I wish there was something that I could do, I'll just keep praying.

    Cindi

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